Tuesday, November 24, 2015

Simple Breakdown

Salutations, internet dwellers! As promised I shall now discuss what exactly Huntington's disease (HD) is and what it does to people.





Huntington's is a neurodegenerative disease. This means that Huntington's causes the deterioration of brain cells and like most neurodegenerative diseases, it is fatal. It is a genetic disease and is passed down from parent to child. A child with a parent who has HD has a 50/50 chance of carrying the gene that causes Huntington's which is called huntingtin. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.  
(Please check out the website for more information and ways you can help)


Once the onset of the disease takes hold the individual has about 10 to 20 years to live. Symptoms of HD include involuntary movement, mood swings, slurred speech and others. I included a video so you all can see the toll this terrible disease has on people and their family members. This disease is not an attacker of individuals- it takes its toll on everyone that person loves as well.

I stated I didn't know why this disease took a hold of me which technically is false.These people live with something they know will rob them of themselves slowly and have it effect everyone around them. Living with that knowledge and burden is just simply mind blowing to me and it struck a nerve. I want to help in any way I can. I'm currently working on a project to try and get a curriculum going for the general public to help spread awareness. There is power in knowledge, dearie.

Please comment with any questions and I will be happy to try and answer them for you. Until next time,


Live Long and Prosper <3

Monday, November 23, 2015

Dreams

Salutations, internet dwellers! In a previous post I asked what your dreams and aspirations were and I feel like I have never really discussed mine. So let me tell you about my crazy goals and dreams.
 
http://hdsa.org/

I don't know about you guys but I used to be a HUGE fan of the show House. Some would say I was obsessed but I think overenthusiastic is a more accurate description. Anyways, a character from the show had a disease called Huntington's, a neurodegenerative disease (I will write a separate post just on the disease). As I watched her character progress and learned snippets about the disease I decided to do research on it. I watched countless of videos and read articles and journals about it. I can't honestly tell you the exact reason why this disease caught my heart like it did yet four years later and I'm still looking at videos, reading books and articles about Huntington's. My goal, as silly as it sounds, is to find a cure for said disease. I understand that it's highly improbable that this will happen in my lifetime yet I still want to fight that fight and spread awareness about it whenever I can.

Those are my goals and dreams, dearies. Go big or go home, amirite? Until next time


Live Long and Prosper <3